Determinants of positive functional outcomes and quality of life for young adults with ASD
Angela Ciccia, PhD, CWRU
Sloane Burgess, PhD, Kent State University
Supporting Transition‐Age Youth & Their Families:
Research Findings, Biegal/Isher (6/11/2019)
Presented at the Milestones National Austism Conference June, 2019
Project Co-Directors:
Davis E. Biegel, PhD
Henry L. Zucker Professor of Social Work Practice, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Karen J. Ishler, PhD
Senior Research Associate, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Background
- Growing numbers of adolescents & young adults with ASD.
- Many young persons with ASD are at risk for reduced quality of life in adulthood.
- Across chronic illnesses and disabilities, providing care for a family member can result in family caregiver burden and depression.
- Families of adolescents and young adults with ASD face a variety of stressors, especially during the transition years.
Study Aims
- Examine Service Use of Youth with ASD & Their Family CGs
‐Service use & experiences
‐Facilitators & barriers to service use
‐Gaps in needed services - Assess CG Burden Among These Family CGs
- Examine Impact of CG Stressors, Appraisals, Resources,and Services Gaps & Barriers on Family CG Outcomes
Also within each: Explore potential differences by family CG demographics and characteristics of youth with ASD.
Methods
Primary Findings – Service needs & barriers
Next Steps
Discussion
Parent Training for Children with ASD Distruptive Behavior, Studies and Results
Cynthia Johnson, PhD (2/19/19)
Cyntha Johnson, PhD
Director, Lerner Autism Center at the Cleveland Clinic; Professor, CWRU
Supporting Families of Adolescents and Young Adults with ASD
Beigel/Ishler (11/5/18)
Davis E. Biegel, PhD
Henry L. Zucker Professor of Social Work Practice, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Karen J. Ishler, PhD
Senior Research Associate, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Parent Training for Children with ASD Distruptive Behavior, Studies and Results
Cyntha Johnson, PhD
Director, Lerner Autism Center at the Cleveland Clinic; Professor, CWRU
Supporting Families of Adolescents and Young Adults with ASD
Beigel/Ishler (11/5/18)
Davis E. Biegel, PhD
Henry L. Zucker Professor of Social Work Practice, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Karen J. Ishler, PhD
Senior Research Associate, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Prenatal Environment Exposures in Autism
Alan S. Brown (10/10/13)
Alan S. Brown, MD. MPH
Professor of Psychiatry and Epidemiology at Columbia University Medical Center, the New York State Psychiatric Institute and the Joseph L. Mailman School of Public Health.
Director of the Program in Birth Cohort Studies at Columbia University Medical Center.
CET: An EBP that Promotes Cognition and Social Cognition
Ray Gonzales, ACSW, LISW-S
Executive Director at the Center for Cognition and Recovery, Cleveland/Akron, Ohio Are
Detecting Autism from Brain Activity: A MEG Study
Roberto Fernández Galán, PhD
Assistant professor of electrical engineering and computer science at Case School of Engineering
The Evolution of Clinical Outcomes Management System
Kevin P. Kearns, PhD
Vice President for Advancement, Engagement, and Economic Development,
State University of New York at Fredonia
Clinical Management of Children with ASD
Dr. Luc Lecavalier, Professor, IDD
Faculty Depart of Psychology, Ohio State University
Thinking Differently: The Cognitive Processes of Adults, Children and Infants with Autism
Mark S. Strauss, PhD
Associate Professor, Psychology, University of Pittsburgh
Using iPS Cells to Study Autism
Ricardo Dolmetsch, PhD
Global Head of Neuroscience at Novartis Institutes for Biomedical Research Concord, Massachusetts
Using Induced Pluripotent Stem Cells to Study ASD
Ricardo Dolmetsch, PhD
Global Head of Neuroscience at Novartis Institutes for Biomedical Research Concord, Massachusetts
Psychopharmacology in Autism: 15 years of Progress and a Long Way to Go
Lawrence Scahill, MSN, PhD
Professor of Nursing & Child Psychiatry
Director of the Research Unit on Pediatric Psychopharmacology
Yale Child Study Center
(download as PDF OR download powerpoint)
Autism Prevalence 2012
Shanna Kralovic, DO
Assistant professor Pediatrics, Division of Developmental/Behavioral Pediatrics and Psychology
Rainbow Child Development Center
(download as PDF OR download powerpoint)
Behavioral Approaches to Autism Spectrum Disorders
Wayne W. Fisher, PhD
H.B. Munroe professor of behavioral research in the Munroe-Meyer Institute and the Department of Pediatrics at the University of Nebraska Medical Center (UNMC).
Director of the Center for Autism Spectrum Disorders at the Munroe-Meyer Institute. He is a board certified behavior analyst at the doctoral level (BCBA-D), and a licensed psychologist.
The Evolution of Autism Research: A Child Neurologist's Perspective
Nancy Minshew, MD
Director of the Autism Center for Excellence,University of Pittsburgh
University of Pittsburgh Endowed Chair in Autism Research and Professor of Psychiatry and Neurology
Autism Research: recent Advances and Future Directions
Andy Shih, PhD
Senior Vice President, Public Health and Inclusion at Autism Speaks
Principal investigator at Seattle Children’s Research Institute’s Center for Developmental Biology and Regenerative Medicine and is an associate professor at the University of Washington.
