Determinants of positive functional outcomes and quality of life for young adults with ASD, Oct 25, 2019
Angela Ciccia, PhD, CWRU
Sloane Burgess, PhD, Kent State University
Supporting Transition‐Age Youth & Their Families:
Research Findings, Biegal/Isher (6/11/19)
Presented at the Milestones National Austism Conference June, 2019
Project Co-Directors:
Davis E. Biegel, PhD
Henry L. Zucker Professor of Social Work Practice, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Karen J. Ishler, PhD
Senior Research Associate, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Background
- Growing numbers of adolescents & young adults with ASD.
- Many young persons with ASD are at risk for reduced quality of life in adulthood.
- Across chronic illnesses and disabilities, providing care for a family member can result in family caregiver burden and depression.
- Families of adolescents and young adults with ASD face a variety of stressors, especially during the transition years.
Study Aims
- Examine Service Use of Youth with ASD & Their Family CGs
‐Service use & experiences
‐Facilitators & barriers to service use
‐Gaps in needed services - Assess CG Burden Among These Family CGs
- Examine Impact of CG Stressors, Appraisals, Resources,and Services Gaps & Barriers on Family CG Outcomes
Also within each: Explore potential differences by family CG demographics and characteristics of youth with ASD.
Methods
Primary Findings – Service needs & barriers
Next Steps
Discussion
Parent Training for Children with ASD Distruptive Behavior, Studies and Results
Cynthia Johnson, PhD (2/19/19)
Cyntha Johnson, PhD
Director, Lerner Autism Center at the Cleveland Clinic; Professor, CWRU
Supporting Families of Adolescents and Young Adults with ASD
Beigel/Ishler (11/5/18)
Davis E. Biegel, PhD
Henry L. Zucker Professor of Social Work Practice, Jack, Joseph and Morton Mandel School of Applied Social Sciences
Karen J. Ishler, PhD
Senior Research Associate, Jack, Joseph and Morton Mandel School of Applied Social Sciences