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GLOW

GLOW PROJECT

Genomic Lifecourse Literacy and Outreach for Wellness

GLOW helps people in Northeast Ohio understand genetic information that matters to their health — before, during, and after pregnancy, and across a lifetime. If you were invited to a GLOW session, this page explains what that means and who is involved.

 
Skyline, the word GLOW with DNA in the middle
BUILT WITH OUR PARTNERS: MetroHealth  ·  First Year Cleveland  ·  Genetic Support Foundation  ·  The Light Collective

Our Community Partners

GLOW is built in partnership with communities. These organizations help keep the project grounded in the real needs of Cleveland and Northeast Ohio families.

MetroHealth
Local partner · Health system
MetroHealth
Cuyahoga County's safety-net health system, serving a large and diverse patient population, including many people who are uninsured or covered by Medicaid or Medicare. MetroHealth brings community-based care and health equity expertise to keep GLOW connected to patients and families across the region.
First Year Cleveland logo
Local partner · Community organization
First Year Cleveland
A community organization focused on improving birth outcomes and reducing infant mortality in Cuyahoga County. Its deep relationships with parents, expectant families, and service providers help ground GLOW in the realities families face during pregnancy and early childhood.
Genetic Support Foundation logo
National partner · Patient education
Genetic Support Foundation
A nonprofit with extensive experience making genetics information understandable, accessible, and useful for patients and families. Their plain-language education work helps keep GLOW's materials clear and practical.
light collective logo, a lighthouse
National partner · Patient advocacy
The Light Collective
Founded by genetic health advocates, this organization elevates patient and community voices in health technology and research, helping GLOW think carefully about privacy, trust, and how people want their health information handled.
Based at CHANGE, Case Western Reserve University
The Bioethics Center for Health and Genomics (CHANGE) brings together researchers, clinicians, and community partners to address the ethical, social, and practical questions of advances in genetics and genomics.
Part of CEAL4Genomics, an NIH effort
GLOW is part of a national NIH-supported network strengthening community engagement in genetics research and improving trust in genomic screening and testing.

What is GLOW?

We want to help people understand the genetic information that is important to them. Our genetic makeup is one thing that creates differences in people's health. For example, some babies in Northeast Ohio are born with more health problems, and some adults may have a higher risk for cancer.

People who have less access to health care may have trouble learning and using this genetic information. GLOW is working with the community here in Northeast Ohio to help everyone understand their genetic information. Together, we are creating digital tools to help people learn this information — in plain language, in English and Spanish, and built with community input from the start.

GLOW is funded by a $1.7 million grant from the National Institutes of Health (NIH), as part of NIH's Community Engagement Alliance for Genomics (CEAL4Genomics) — the first CEAL4Genomics award in Ohio. The project is based at the Bioethics Center for Health and Genomics (CHANGE) at Case Western Reserve University.

Our Team

GLOW Leadership
Aaron Goldenberg, PhD, MPH
Director of CHANGE; Professor, Departments of Bioethics and Genetics and Genome Sciences, CWRU
Megan Allyse, PhD
Associate Professor of Bioethics, CWRU; Development Director of CHANGE
Stephanie Meredith, DrPH
Genetic Support Foundation
Module Co-Leads
PANEL
Perinatal genomics & early lifecourse learning
Marsha Michie, PhD
Project Lead · Associate Director, CHANGE
Angela Newman-White, M.A.
Community Partner Lead · Executive Director, First Year Cleveland
Julie Hewitt, M.Ed.
Project Manager, First Year Cleveland
LIFT
Life course transitions & family health history
Lynette Hammond Gerido, PhD, MPH
Project Lead · Scientific Director, CHANGE
Valencia Robinson, Ed.S.
Project Lead and  Co-Founder · The Light Collective
Ashley Hughes, PhD & Jacqueline Dolata, MBA
MetroHealth Center for Health Equity Engagement Education and Research (CHEEER) — embedded in the LIFT research team, with additional support for PANEL and the collaborative core
Staff
Sabina Rubeck, MPH
Case Western Reserve University
Harlie Custer, M.A., MPH
Case Western Reserve University

Why Was I Invited to a Session?

You may have been invited to a listening session, an interview, or a co-design activity. That's because GLOW is community-first: local leaders, health professionals, and community members like you help shape what the project asks, what it addresses, and what it builds. Your questions and experiences directly guide the tools GLOW creates — this is not a one-time survey, and there are no wrong answers.

ear with word bubbles
1. Listening Sessions
We hear directly from families about what genomic health questions matter most to them.
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2. Co-design Meetings
Community members and professionals build resources together, side by side.
 
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3. Conversations
Through interviews and one-on-one conversations, we hear your priorities and experiences directly — helping shape the project's direction.

Genetics Questions Come Up at Different Points in Life. GLOW Starts With Two.

Genetic information can matter before pregnancy, at birth, in childhood, or later as an adult — and it can affect parents, children, siblings, and extended family. GLOW is starting with two focus areas that reflect different life stages.

PANEL
PerinAtal GeNomics and Early Lifecourse Learning
mom and dad smiling at baby
For families navigating genetic screening or testing during pregnancy, birth, and early childhood — helping make sense of what tests mean, what choices exist, and how results may affect a child and family over time.
LIFT
Life Course Transitions and Family Health History
two happy women walking
For adults under 50 and their families thinking about hereditary breast and ovarian cancer risk — supporting conversations about family history and when to seek genetic evaluation.

Questions People Ask Us

Is GLOW a research study? Do I have to join something?
GLOW is a community engagement project that helps shape research and health tools. Being invited to a session does not sign you up for a medical study — it's an invitation to share your voice and questions.
Will I have to talk about my own genetic or medical information?
No. Sessions focus on your experiences, questions, and opinions about genomic health information and communication — not your personal medical history.
Is this only for people expecting a baby or with a cancer diagnosis?
No. GLOW welcomes community members at any life stage. PANEL focuses on pregnancy and early childhood, and LIFT focuses on adults under 50 and family health history — but everyone's perspective helps shape the project.
Is there a cost to attend a session?
No, participation is free. If you have questions about compensation or logistics for a specific session, reach out using the contact information below.
Will what I say be recorded or shared publicly?
We do not attribute individual comments to you by name. Notes from listening sessions and co-design meetings may be summarized to help shape GLOW's tools and resources, but always without identifying you personally. If a session will be recorded, you'll be told in advance and asked for your consent.
Who do I contact with more questions?
Use the contact information below, or ask the GLOW team member or community partner who invited you — they can connect you directly with the project.

Have a Question About GLOW?

Reach the GLOW team at GLOW@case.edu!

Bioethics Center for Health and Genomics (CHANGE) — Case Western Reserve University · Part of CEAL4Genomics, an NIH Community Engagement Alliance (CEAL) program