Bioethics Center for Community Health ANd Genomic Equity (CHANGE)

Our Vision

Promoting genomics equity through research, education, and partnership with local communities.

Our Mission

To support and foster community-engaged research, education and service that advances health and health care equity for all through genomics.

Who We Are

Director: Aaron Goldenberg, PhD, MPH

Associate Director: Marsha Michie, PhD

Scientific Director: Jessica Cooke-Bailey, PhD

Assistant Director: Roselle Ponsaran, MA

Senior Advisor: Patricia Marshall, PhD

 

Our Partners

Our center will build partnerships between researchers across the CWRU campus and with local and national organizations.  

Our Events

September 19,2022 - Genomic Equity and Research Ethics: A Panel for Students and Trainees The panel discussion on "Genomic Equity and Research Ethics" was the first event for the Bioethics Center for Community Health and Genomic Equity (CHANGE).The panel was especially aimed at students and trainees. The speakers are: Patricia A. Marshall, Dept. of Bioethics, CWRU, Eric Juengst, Dept. of Social Medicine and the Dept. of Genetics at the University of North Carolina, Chapel Hill, Shlomit Zuckerman, Center for Bioethics and Law at Tel Aviv University

September 20, 2022 - The Patricia Marshall Lecture on Genomics and Equity: Dr. Charles Rotimi, Scientific Director at the National Human Genome Research Institute and president of the American Society of Human Genetics, was the inaugural speaker.

Contact

For more information, or to collaborate with us, please contact us at genomic-equity@case.edu

Research

We support research focused advancing health and health care equity for all through genomics.

Current projects include:

  • the Cleveland African American Prostate Cancer Project (CAAPP)
  • the Framework for Advances in Reprogenomics Ethics and Regulation (FAIRER) project
Articles
  • “Community Engagement Strategies for Genomic Studies in Africa: A Review of the Literature.” BMC Medical Ethics 16, no. 1 (2015): 1–12.

  • “Photo-Documentation in the Community: Reflections on Genetics, Health and Health Disparities.” International Journal of Epidemiology 46, no. 2 (2017): 385–89.

  • “Ethical Challenges in Community-Based Research.” The American Journal of the Medical Sciences 322, no. 5 (2001): 241–45.Michie,

  • “Pathways to Affluence: Socioeconomic Incentives in Prenatal Testing and Abortion.” In Born Well: Prenatal Genetics and the Future of Having Children, 105–22. Springer, 2022.