Aaron Goldenberg, PhD

Aaron Goldenberg is a Professor and Vice-Chair in the Department of Bioethics at Case Western Reserve University (CWRU). He is also Director of the CWRU Bioethics Center for Health and Genomics. He has a background in bioethics, health behavior/health education, public health ethics, and public health genetics, and has expertise in qualitative and quantitative research design and analysis. His work has focused on the ethical, legal, and social issues (ELSI) associated with research and clinical care for rare diseases and the integration of new genomic technologies into research, clinical and public health settings. A major interest is in increasing integrating family perspectives in the considerations of the ethical and social implications of expanded genetic and genomic screening in newborns and children – especially addressing how genetic information may change care decisions and impact the diagnostic and intervention odysseys of families. He received his MA and PhD in bioethics from Case Western Reserve University and his MPH from the University of Michigan. He is a nationally recognized expert in newborn screening, treatment of rare diseases-including the development of new gene-targeted therapies, and pediatric ethics.  Dr. Goldenberg is currently the co-chair for the ethics, legal & social workgroup of the Association of Public Health Laboratories (APHL).  He has previously served as a member of the National Academies’ Planning Committee for a Workshop on Exploring the Current Landscape of Consumer Genomics and Workshop on Next-Generation Newborn Screening - The Promise and Perils of DNA Sequencing of Newborns at Birth.