Study: Genetics of Dementia/Alzheimer’s Disease in Minority Populations

young grandaughter wrapping arms around grandmother's neck and kissing her cheek

Alzheimer’s Disease can affect anyone, and our team of researchers wants to see if there are genetic differences in different populations.

Jonathan Haines, PhD, has been studying genetics and Alzheimer’s Disease for over 20 years. We know that genes can play a part in who may eventually develop Alzheimer’s Disease and who may not, but there are still many unanswered questions:  What causes Alzheimer’s Disease? Is there a better way to diagnose it?  Are there better treatments? Is there a way to predict who will get it?

Dr. Haines is looking for answers to some of these questions, and you can help.

What is the Study About?

The goal of the study is to discover the genetic factors that may or may not contribute to the development of Alzheimer’s Disease in individuals 60 years of age or older.

How Can I Help?

  • Participate in the research study if you qualify.
  • Give a brochure or a link to this website to people in your community who may be able to participate.

Who Should Participate?

Alzheimer’s Disease can affect anyone, but we want to see if there are genetic differences in different populations, so we are looking for:

  • Families of any race/ethnicity

    • With more than one person living with dementia, memory loss or Alzheimer’s Disease
  • Individuals of African American heritage: 

    • Of any age who have dementia, memory loss or Alzheimer’s Disease OR
    • Are 60 or older and do not have memory loss
  • Individuals of any race/ethnicity:

    • With early onset memory loss (younger than 60 years old)

What Does Participation Involve?

  • Reading and signing a consent form
  • Giving a detailed family and medical history
  • Taking an evaluation of memory and thinking
  • Giving a blood or saliva sample

More Study Information

  • Participation is voluntary
  • There is no cost to any individuals or families
  • Interviews and blood draw can be done at your home or a setting of your choice
  • All information is confidential
  • Participation does not affect your access to health care or insurance

How Do I Participate?

To find out more about the study, if you have any questions about the study, or to be enrolled in the study, please call or email:

Gabrielle Blackshire

  • 216.368.2826

Devon Jones 

  • 937.760.0735

Sara Kennedy

  • 216.368.4693

Carlos Lewis-Miller

  • 856.418.4275