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Aside from testing and surveilling prion disease, an additional aim is to provide accurate information regarding this disease through various outreach efforts. In order to convey information about prion disease in general and how our center operates, our faculty and staff continuously engage with the public through podcasts, virtual talks and seminars, published articles and research papers.

Below are some publications and talks, grouped by category.

 
 

Please listen to this virtual talk from Mark Cohen, M.D. for the 2020 American Association of Neuropathologists meeting regarding what every neuropathologist should know about prion diseases. In this talk, Dr. Cohen discusses different types of prion testing performed at the National Prion Disease Pathology Surveillance Center (NPDPSC), prion disease in general, and some information regarding our center. 

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Take a look at this virtual talk where our Center's director, Brian Appleby M.D., gives an update on the work of the National Prion Disease Pathology Surveillance Center (NPDPSC). In this update, Dr. Appleby briefly talks about research studies at the center; our testing procedures and Autopsy program; a brief introduction to our Center's staff; and the NPDPSC center in the environment of COVID-19.
 
 
 
 

Please click here to listen to the Neurology® podcast interview with Brian Appleby, M.D., in which the Center's most recently published research on the Neurology Journal website, titled "Diagnosis of prion diseases by RT-QuIC results in improved surveillance" is discussed.

If you want to learn more about CSF and RT-QuIC testing, you can visit and read the Cerebrospinal Fluid Diagnostic Tests page on our website. 

 
 
 

Our Autopsy Coordination team published this informative article in The Director regarding the stigma of prion disease faces with regard to autopsies and/or burial services. The article gives an overview of prion disease, some of its characteristics, and more importantly - provides important information about the requirements of burial and/or cremation services for patients with prion disease. 

If you want to learn more about our Autopsy Program, please visit our Autopsy Coordination Program page, where you can read some of the Frequently Asked Questions, and also contact information, should you have any other questions.