Parent caregivers of children with chronic conditions who require life-saving technology such as mechanical ventilation or feeding tubes must maintain a high level of vigilance 24 hours a day, 7 days a week. They usually provide a majority of their children’s care and are often stretched thin by the caregiving demands thus neglect health promotion behaviors, including sleep, that result in a deterioration of their own mental and physical health. The goal of this study is to test the effectiveness of the Resourcefulness Training© (Jaclene A. Zauszniewski, PhD, RN-BC, FAAN, 1995) intervention that will improve these caregivers’ mental and physical health and health promotion behaviors while they continue to provide vital care for these vulnerable children. During face-to-face meetings, a study team member collects hair samples to measure cortisol levels, provides instruction for use of a wristband device to measure sleep and administers questionnaires to examine the impact of the intervention on mental health, physical health and health promotion activities over nine months.
This study is funded by National Institutes of Health/National Institute of Nursing Research, R01NR017614 (Resourcefulness Intervention to Promote Self-Management in Parents of Technology-Dependent Children)